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Showing posts with label Surgery. Show all posts
Showing posts with label Surgery. Show all posts

Wednesday, December 15, 2010

Let The Frustration Set In

My update from yesterday's post isn't exactly what I was wanting to write...

My afternoon ended in pain, frustration and a few tears. While the new Neurosurgeon was nice, promptly on time and helpful to get me into tests the same day, she had no new news to report and no conclusive findings. Shocker? I think not. I've had so many tests run and so many tests come back saying there is nothing wrong, yet as soon as a surgeon operates on me, they clearly see the issue and are baffled that it never showed up on tests before.

Again, for the I don't know how many times, I had an EMG Nerve test done. This test is painful and I'd be willing to say the worst of the bunch I've had. While I was in the room, I snapped a few shots to show you what I mean.

The mean machine
This machine monitors the waves of your nerve system. They can see and track the response they get from shocking and making the nerves twitch as well as when they do the second and more painful part of the test, the needle sticking.

the spots they shocked me at...well some of them at least
Once you are hooked up to the machine, they measure out different points on your arm to test the nerve. All the dots you can see here are places that they shocked me at to test the nerve's reaction. They also did some shocking on my elbow, which I'll admit hurt so bad I wanted to scream.

The second part of the test is worse than the shocking. They stick these needles into your hand/arm/wherever and measure the sound wave/activity of the nerve. This is beyond painful as once the needle is in, they move it around. They only did 2 pricks this time (versus the 8-9 I had before). The first one in the fatty part by my thumb hurt the worst...and still hurts!
needle pick 1
needle prick 2
Needless to say, the doctor again, came up with a confused look and said I needed to go back to my previous surgeon who did my first rib resection. At this point I'm frustrated, annoyed and confused. I just wish someone could find the answer.

I think maybe after the wedding, God willing I can hang on and not be in too much pain before then, maybe I'll try alternative medicine (aka: acupuncture, chiropractor, etc) and see how that works.

So thanks for your thoughts, prayers and well wishes, I wish I had better news to report! For now, I'll just have to grin and bear the pain some more until we can get an answer or try some new things.


**All photos are personal photos taken with my blackberry

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Tuesday, December 14, 2010

Dear Left Arm....Please Start Working Again

It's hard to believe I started the journey of pain about 3 years ago with my left arm. What started as numbness, tingling and stabbing pain has turned into a complete nuisance. There was no mechanism of injury, no answer to be found. Only problem, my left arm was pretty dysfunctional. My right arm is much better, but not perfect. It didn't seem that we needed to be concerned up to this point with it.

The path started with a visit to Piedmont Hospital's Orthopaedic Surgeons group in 2007. Test after test was run and no point of injury could be found. The pain increased with the stress and use and the frustration set in early with this process. I had more cortisone shots, EEG Nerve tests and MRI's than I'd like to count during this first part of the journey.  With no real idea of what else to do, my Surgeon finally decided surgery was the answer. So May of 2008 (notice this started in 2007) I went under the knife. They performed an Ulnar Nerve Transposition  in outpatient surgery. I was sent home, pretty drugged up with a nice cast that I had to wear for about 2 months. Certain this would be the cure, I was confident going forward.

Flash forward 6 months...the pain and frustration was back. The surgery did not alleviate the problem, in fact now it was worse. The pain was still in my elbow, except now much more than before, was in my neck and shoulder. They said it was stress and that physical therapy and some more cortisone shots and EEG nerve scans, which would come up negative for nerve damage/entrapment. Finally about January of 2009, my surgeon believed that the problem was more than he and his team could handle. So I was sent to Emory to a Cardiothoracic Surgeon.

Again, MRI's, EEG's and Cat scans were performed. Again, they all came back negative. It wasn't until they performed the Doppler Flow Test that some results started showing up. Without a doubt, my new Surgeon had determined that a first rib resection would do the trick. It took some time to get into the bookings for surgery (because they were busy and because my work schedule was insane). Finally, in August 2009, I went under the knife again. This time, a much more invasive and serious procedure. They went in through my armpit and removed my first rib (which by the way, is in  your neck up by the clavicle).  I remained in the hospital in quite a lot of pain and on a lot of medicine (with an IV in my neck administering Morphine) for about 4 days. I was released on the 5th day to continue the recovery process at home. I wasn't able to drive for 3 weeks, couldn't work and had lots of pain, more than I could imagine having. Again, after the pain subsided and the healing process came closer to an end (much longer and worse than the first surgery), I was confident this did the trick.

Flash forward again to now. Today I'm having just as many issues as before. The pain in my elbow is ever present. My neck, shoulder and arm are constantly numb and the frustration is even more (if that's possible) than before. Today I head to the Neurosurgeon at Emory hospital. I'm not sure really what to think or what they'll find. With my track record, they wont find anything.

This has got to be one of the most frustrating thing I've ever dealt with. There is no mechanism of injury to relate the problem. There is no fix that has seemed to work. Maybe this new Surgeon will figure it out...or at least I hope! What I do know is that I've learned a lot about my body, pain tolerance and what I can/can't handle. My family, friends and Mike have been there for me since the beginning and know how much this wears on me and well, them too. I used to joke about just cutting off my left arm, though I know that wouldn't do the trick and would be a whole new set of issues. I just want to be back to normal.

So with that....I beg of you new Neurosurgeon, figure this mystery out.



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